Sam’s World ~ It’s Gluten Free

Autism is a multifaceted disorder. It affects the person in a lot of ways.

Obviously autism affects the way words and situations are processed. You have to remember when having a conversation with an autistic person that odds are there is a lot more being said inside their heads that is left unsaid but the expectation is that if they think it you know it.

But it’s not just how they process the words and situations around them. It also affects how they process the world around them as a whole. Their senses are very sensitive. For a lot of children on the spectrum loud sounds and noises are particularly disturbing. The way clothing and other materials feel against their skin can also be a major issue. When Sam was little he would sit and scoop up sand and just let it run through his hands over and over again. He still does it. I’ve already shared how he would rub his head on the carpet. He was entranced by tactile exploration. You’ve no idea how far one raw egg can be smeared until a three year old autistic boy is examining it.

The sensory issues show up in a major way with food. He wouldn’t eat off a fork or spoon until he was almost three. The sensation of the metal combined with the sensation of the food in his mouth was too much. He wouldn’t ice cream until he was four or five for obvious reasons. One week he would peel all the bread off of a corn dog and only eat that part and the following week it was peeled off and pushed aside in favor of the hot dog.

I’m giving you all that back story so that you’ll understand that going gluten free was a big step for us. I’m talking huge. Like most kids on the spectrum Sam self regulated his eating to some very specific items. And for those of you out there that think you can out wait an auttie and they’ll eat when they’re hungry enough…um, no. At least not at first and not when they are toddlers. I’m convinced that an abnormally strong persistence is genetically woven into the DNA of autism and holds all the other traits together.

Of course we assumed that his eating habits where the result of the sensory issues he had until we started reading up on gluten problems connected to autism. Turns out our little fella was a junkie and literally craved the gluten.

Before I go any further I’ll put my disclaimer out there. Gluten free works for us and more importantly it works for Sam. I’ve tried to make it clear in all my posts on autism that what works for one will not necessarily work for another but I do encourage parents to at least consider the affect gluten may be having on your child. You might be surprised. I know we were.

Sam’s diet in the beginning of our autism journey consisted mainly of things like french fries, pancakes, and things like chicken nuggets and other foods that had some kind of batter on them. He also liked pretzels and cheerios. The boy loved multi grain cheerios. Are you seeing a pattern here?

Sam doesn’t have an allergic reaction to gluten. It doesn’t make him sick in the sense that it does with someone who suffers from Celiac disease. For people like Sam gluten actually becomes a drug in their system. Sam’s body does not break down gluten, which is a protein natural to wheat. Instead, it forms an opiate that will cross the blood brain barrier and essentially acts as any other opiate does in the human body. Going gluten free can and does cause the person to go through varying amounts of withdrawal the same way a drug addict does. This is why it can be so scary for parents with autistic kids to take this step. It’s not easy.

We started reading up on gluten free but knowing what a huge undertaking it was I was a little hesitant. There were tests that could be done to determine whether Sam had the unbroken gluten in his system and we were considering doing it. Instead of spending the money first though my ever so thrifty and slightly skeptical  husband decided we should just take a day and not give him any gluten and see what happened. Eight years ago gf foods were not as readily available as they are today. We spent a lot of time and a whole lot of money at a local health food store checking out anything that said gf on it.

The whole day we coaxed Sam into eating gluten free things knowing that in the evening we were going to IHOP and he’d be having pancakes. To say there was a noticeable change is an understatement. Not so much during the day as if suddenly he was making eye contact and carrying on conversations but that night when he ate dinner you could just see him come undone. It was like all the normal autistic characteristics were on steroids. The self stimulations went full speed. We were convinced and didn’t feel the need for any further testing. If we could see him spiral out of us while he was eating a pancake then we knew we should give it a go.

We also had the bright idea that the whole family should go gluten free at the same time. We figured it couldn’t hurt and according to my research might also help with some skin issues the girls had. Did I mention that usually casein free goes hand in hand with gluten free. That’s right, our entire family went wheat and dairy free.

We lasted three months. It wasn’t the disgusting mac and chreese (no, that’s not a typo…it’s what it is actually called) that tasted worse than the cardboard box that it came in that did us in. It was the oh so expensive and horribly tasting hamburger buns that even Rob couldn’t choke down that did it.

Thankfully we discovered that casein didn’t seem to affect Sam so we were able to go back to normal on that front. Which was wonderful because as one commentator on a support board stated, if evil has a taste it is casein free cheese.

Sam does really really on the gf diet and has always asked before eating anything if it was gf. Gluten free products are much easier to find as stores like Walmart and Publix sell gf items. When Rice Chex went gf Sam put about six boxes of cereal in the buggy before I even knew it.  It was a happy day for me when Betty Crocker released their line of gf products and we all did a happy dance when Bisquick  started offering a gf baking mix. It can still be tricky and there are times when we have to make special arrangements for his food but it’s normal to us now.

As he got older we’ve pushed him to try different foods. His whole world opened up when he started to eat meat. Because of the other sensory issues we’ve learned there are certain foods that he just isn’t able to eat. Like broccoli. Broccoli is a very busy food. He will eat green beans but prefers fresh ones to cooked. He also enjoys sweet potatoes especially if I’m making the casserole with roasted marshmallows on top. He eats bananas and apples and doesn’t really care for many other fruits. He doesn’t like the texture of rice or potatoes so most of his meals consist of meat and veggies.

He’s real big into tacos. In the last year he moved from just cheese and taco shell to an actual taco with meat. His record is eight at one sitting. He also loves pizza. We had a coupon for Mellow Mushroom and when we learned they had a gf pizza we had to take him. He ate the entire pizza but himself. He makes pizza at home a lot using a gf English muffin that we get at Publix. The funny story for this week you’ll just have to trust me on…sometimes when he is making the pizzas he will act as if he’s on a cooking show and tells me step by step what he’s doing. Doesn’t sound really funny does it? Here’s the thing though…he does it in this silly voice that is a cross between Julia Child and the Swedish chef off of the muppets 🙂

Here is a recipe for some delicious cookies that we can all make and enjoy.

Test Kitchen #20 ~The I Don’t Know Where It Came From Edition (Baked Sweet Potatoes)

Hello, my name is Marty and I like to cook with butter.

There I said it. In a world obsessed with olive oil, coconut oil, and all natural good for you oils, I am declaring my love for real butter. Not like Paula Deen just eat the stick of butter like it’s a candy bar kind of love but I do like my butter.

It sort of makes this simple recipe as far as I am concerned. And by simple, I mean s.i.m.p.l.e. but such great flavor! I like to pair it best with pork.

What you’ll need:
about 4 to 6 good sized sweet potatoes, peeled and sliced
1/2 to 3/4 a stick of real butter (depending on the number of potatoes you use)
Italian seasoning
What you’ll do:
Melt your butter in a 9×13 baking dish
Stir your seasoning into the melted butter
Add your sliced sweet potatoes making sure to coat them well with the seasoned butter
Bake at 350 degrees until potatoes can be pierced with a fork easily (about 30 to 45 minutes)
Serve as a side to your favorite chicken or pork dish and enjoy!

Linking up with This Gal Cooks, Melt in Your Mouth Monday, and Monday Funday. And now with Try a New Recipe Tuesday.

Pinterest Test Kitchen #13 ~ Flourless Chocolate Cookies

Six years ago we put our son on a gluten free diet. It was hard. Gluten free food was scarce and very expensive. I found baking from scratch to be very difficult and very precise. I am not a precise kind of cook…I do heaping and pinches and tweaking kind of cooking. But for our son’s sake I persevered and he didn’t waste away and gluten free has been good for him and his autism.

Over the last several years things like celiac disease and just general gluten intolerance has become more common. While it is sad that people have such health issues it has also brought about a much more friendly non gluten community with easier access to gf foods. Walmart and Publix both carry gf items and many restaurants offer gluten free menus. (Hello Mellow Mushroom! You’ve no idea how happy you made one pre-teen boy when you arrived in town with a gf pizza…he ate the whole thing all by himself the first time 😉

Tons of blogs have popped up all over cyber space and while some recipes may be a little more complex than others there is a wide array of recipes to suit even the most undisciplined of chefs such as myself. When I came across this recipe for flourless chocolate cookies I knew they’d be in our cookie jar soon.

gluten free, cookies, chocolate, homemade cookies, gf cookies, flourless cookies

Oh, boy are they some kind of good. A yummy chocolate flavor that is slightly reminiscent of a meringue but a delicious texture that is both chewy and crunchy…they really are so good.

What you’ll need:
3 cups powdered sugar
2/3 cups unsweetened cocoa powder
1/8 tsp salt
2 to 4 large egg whites at room temperature
1 TBS pure vanilla extract
1 1/2 cup chocolate chips

Disclaimer: These cookies are more of a batter than a dough…they like plenty of room to spread while baking.

What you’ll do:
Cover your cookie sheet with parchment paper (This is very important…do not skip!)
Mix the first three ingredients together. Add in the vanilla and egg whites starting with just two. Add more if needed to get a thick brownie batter like consistency. Stir in chocolate chips. Use ½ tablespoon to spoon  mixture onto your parchment covered cookie sheet. Bake at 350 degrees until the tops are glossy and cracked…about 12 to 14 minutes.


These are some seriously good cookies so if you’re heading to cookie exchange party or just enjoying holiday hoop la you may want to give them a try. You could place inside a white bakers box and tied with pretty string to make a lovely neighbor or teacher gift.

Sharing the good stuff with Sweet Sharing Monday, This Gal Cooks, Show Me Your Plaid, Melt in Your Mouth Mondays, and   Try a New Recipe Tuesday. Whew, that is a whole lot of cooking going on! Be sure to come back and let me know if you try these!

Test Kitchen #9 ~ Frito Dessert

Notice something different about this week’s title? Yep, it’s missing the “pinterest” part. Apparently I cooked before I pinned. I mean, obviously I did but in the onslaught of all the new recipes I find I have sort of forgotten that fact. But this week I am going to share a sweet and simple treat with you that has long been a favorite. As an added bonus it is also gluten free, so yay! (Please do not mistake the gf-ness to mean healthy though…it is definitely a suh-weet treat.)

Actually it’s a near perfect blend of salty and sweet and I have found people either love it or hate it. Make it at least once before you decide though. The ingredients sound weird together but it really is quite tasty. Oh, what’s the name of this confection you ask?

Frito Dessert.

It’s basically a layer of fritos glued together with a peanut buttery almost fudgey likeness. Intrigued? Here’s what you do.

Empty a bag of Fritos into a 9×13 baking dish.

Stir together one cup of sugar with one cup of light karo syrup over medium heat until it starts to bubble and the sugar dissolves. Remove from heat and stir in one cup of peanut butter until well blended. Pour over the fritos making sure to coat them evenly. You will probably make more than one pass over them.

Allow it to set for at least an hour and a half before cutting into squares and enjoy!

I’m posting a day late but still serving it up with Sweet Sharing Monday, Couponing & Cooking, and This Gal Cooks.